The first two girls that are MRI scanned are Bonbonnetje and Silk. Both with good results.
Bonbonnetje had her heart test and ECVO eye test done and both were clear.
Silk had till now only her ECVO eye test done and this test was clear too, she will get her heart test in march 2010.
'read more about the work of Clare Rusbridge and her study on Chiari-like malformation & Syringomyelia